(More reporting from the front lines on what’s happening in health care – promoted by atdleft)
Bonnie Terry had a job, insurance, and a recent diagnosis of cancer. Her story from there is one more of the millions of tragedies that make up what we call the healthcare crisis. She lost her job, then her insurance, then her doctor, then her life. Bonnie Terry was killed as much by her cancer as by a healthcare sector designed to maximize profits for private insurance companies and minimize care for sick people; that’s not healthcare-that’s murder by spreadsheet. Also, we celebrate the accomplishments of a noted AIDS activist, learn more about the already out-of-control cost of the Massachusetts plan, cheer the medical students aiming to reverse the hateful policies of the American Medical Association, and read about an interfaith group of religious leaders calling for healthcare for all…children.
Brought to you by the National Nurses Organizing Committee as we organize to make 2007 the Year of SinglePayer Healthcare.
Bonnie Terry is the face of America’s healthcare crisis. As reported by Nicole Foy, Bonnie was a homeless activist and missionary for the Methodist Church who was overwhelmed at age 49 to be diagnosed with breast cancer. She had insurance through her job, and upon her diagnosis:
The statistics seemed to be in her favor. Over 90 percent of women in her position survive at least five years. About 70 percent make it to the 10-year mark.
{Her physician} suggested neoadjuvant therapy, a way of shrinking the tumor so it’s easier to take out.
That meant chemotherapy first, surgery second, then radiation. Wagner didn’t want to lose any time. She suggested {Dr. Robert Drengler,} an oncologist at South Texas Oncology and Hematology, and urged Bonnie to begin chemotherapy immediately.
Then she lost her job. The Methodist Board of Global Missionaries chose not to offer her COBRA extensions of her health insurance, so she purchased one of the high-premium, low-cap “junk insurance” plans being pushed by Romney, Schwarzenegger and others in the “mandated insurance” crowd. What happened?
Bonnie began racking up medical debt and was forced to rely on donations to try and pay for her care.
Accepting financial help was difficult for Bonnie, who always had prided herself on paying bills in full and on time. She wasn’t one to ask for special favors.
Amid chemo and radiation treatments, she sent handwritten thank you notes on floral stationery to her hundreds of supporters.
That’s right-she raised money from hundreds of supporters to pay for her chemo, instead of focusing on her recovery. Her insurance ran out just as her cancer returned.
By the spring, when she first felt the swelling again under her arm and returned to Drengler, cancer was roaring through her body. ….
In the chart, Dr. Ronald Drengler described Bonnie’s prognosis as “very guarded.” He called for palliative treatment, care for patients for whom there is no cure.
Then the chart noted Bonnie had lost her health insurance – and, consequently, her status as Drengler’s patient. It read: “Will be seeking enrollment with University group,” meaning CareLink, Bexar County’s public medical program for the poor. …
Bonnie later would tell friends she was hurt but not surprised that Drengler dropped her as a patient because she had no insurance. He has to pay the bills, too, she said. (Drengler did not return calls seeking comment for this article.)
It would be seven weeks after Drengler’s fateful words – back, with a vengeance -until Bonnie received her first chemo treatment to try to stop her aggressive disease.
Dr. Drengler seems to have forgotten his oath to first do no harm. What happened to Bonnie when she entered a public health system that has been systematically underfunded by politicians on the payroll of the insurance companies and other healthcare corporations?
Once she lost insurance, tests took longer. Doctors rotated. Care wasn’t centralized. There were mountains of bills to pay, forms to fill out, documentation to turn in, public payment programs to apply to.
The stress of it all seemed to zap what little energy Bonnie had left to deal with the cancer spreading stealthily through her body.
Bonnie said:
“I’m on a learning expedition, learning how to access a system that I never had to use before. It is so difficult being poor. I would rather get up and go to work as I have been doing every day of my life than sit in offices begging for services that are so caught up with bureaucracy.”
Here’s why we should all be motivated by Bonnie:
Realizing she couldn’t get in for several weeks to Bexar County’s busy breast cancer clinic for the indigent, Bonnie, then 48, took a trip whose very itinerary spoke to America’s health care crisis.
As cancer cells coursed through her bloodstream, invading her lungs and bones, she flew with Moose and other friends to Washington, D.C., to lobby for increased funding for cancer research and improved access to medical care….
Though many in Bonnie’s circle believe poor access to health care hastened her death, it isn’t clear whether delays in her treatment are directly to blame for her dying when she did. What is clear is that she waged an uphill battle on two fronts: one against an aggressive form of breast cancer and the other against a sluggish and largely impersonal medical system.
Bonnie’s life and death reminds me of the life and death of my friend Bob Hattoy, a legendary AIDS activist who died this weekend. He took his struggles with sickness and used it as motivation to fight for better healthcare for our country. In a speech before the 1992 Democratic Convention, Bob, said,
“We are part of the American family and, Mr. President, your family has AIDS and we’re dying and you’re doing nothing about it.”
Except it’s not just AIDS-it’s breast cancer, and diabetes, and childhood diseases, and accidents-and murder by spreadsheet committed every day by insurance and healthcare corporations.
So we fight for SinglePayer healthcare so that Bonnie and Bob, and all the members of our family, can concentrate on getting well, not on managing their bankruptcy and begging for care.
In this movement, one of the important struggles is Massachusetts; the new insurance plans that patients are required by the government to buy have come out and here’s the bottom line: if you earn $30,000 per year, you will be required to pay $4,000 in premiums and deductibles before you get one iota of healthcare. Elsewhere we read that a group of religious leaders got together and agreed that all children deserve healthcare-but they seem to have forgotten about adults like Bonnie and Bob. But we are all patients, which is the strength of our movement, and we end on a hopeful note, as a group of idealistic medical students is committed to overturning the harmful legacy of the American Medical Association, which is notorious for blocking healthcare reform.
If you want to join the fight for single-payer healthcare, sign up with SinglePayer.com, a project of the National Nurses Organizing Committee. You can share your story about surviving the healthcare industry here, and start contacting media here.